FAQs

We are a 100% volunteer based non-profit.

Approximately 5,000 people are diagnosed with ALS every year in the US. It is estimated that at least 16,000 Americans may be living with ALS at any given time. Every 90 minutes someone is diagnosed and someone passes from ALS.

The average cost of living with ALS is $300,000 per year. This figure does not include participating in trials, modifications to your home, or wheelchairs and other assistive devices.

ALS is a rapidly progressive disease with no known cause or cure. 10 percent of ALS is familial ALS (family history of ALS) which is easier to treat. The remaining 90 percent is sporadic ALS and doctors cannot tell you how or when you got it.

The average age range of people being diagnosed with ALS is between 40 and 70 years old. Extremely rare cases of the disease are diagnosed in people in their 20s and 30s.

All funds are made through donations and events. Our money is distributed to medical research for the cure for ALS and to ALS patients.

Also known as a 501(c)3, a nonprofit is a group organized for purposes other than generating a profit. Its mission and purpose are to further a social cause and provide a public benefit.

Our mission at The Tyler’s Tribe Foundation is to raise funding for research for the cure for ALS and to aid ALS patients with the astronomical medical costs of living with this disease.

This means that no part of The Tyler’s Tribe Foundation’s income is distributed to its members, director or officers. Nonprofits have an administrative cap for salaries and other admin expenses. At this time, our CEO does not take a salary.

Both nonprofits and for-profits seek to maximize revenue. Whereas for-profits may distribute revenues to shareholders, nonprofits must recycle all earnings back into the organization. Nonprofits are formed solely to benefit the public good, while for-profit businesses exist to fulfill an owner’s organizational objectives.